Scope on participatory medicine
At the heart of this shift are online peer-to-peer support networks which enable patients to share details of their medical conditions with people who have the same or similar conditions and compare and contrast different diagnoses and treatments – anywhere in the world. Patients can ask for advice, learn from each other, discuss test results, compare how different medications, treatments or combinations of drugs might or might not be working. This sharing of information creates a more informed and empowered patient and can lead to a radical reconfiguring of the doctor/patient relationship.
While online social media are very powerful tools for enabling this shift, they are by no means the only ones.
Mobile health applications allow people to monitor their own status and symptoms, and send results electronically to health care providers. Remote monitoring and treatment support allows for greater involvement in the continued care of patients. Such projects can operate through either one- or two-way communication systems.
Electronic medical records (EMR) is another important ongoing development. A fully functional EMR can be the centerpiece of participatory medicine. It can be the repository for data collected by other connected technology.
Are you working in this domain, or do you know other people who are…our call for proposals is open.